Thursday, 31 July 2014
Working with Saving Faces
Hay all, I have not blogged in a while. Hope you are all well. The weather in the UK has been awesome the past few months. The heat is really helping to keep my pain levels down. This is just a quick post to let you know about some work I am doing with Saving Faces (The Facial Surgery Research Foundation).
Saving Faces is a registered research charity based at St. Bartholomew’s Hospital in West Smithfield, London. The charity is the brainchild of consultant maxillofacial surgeon, Iain Hutchison, who launched Saving Faces in 2000. Over the years Iain and his colleagues came to realise that very little research was being conducted into the treatment of facial diseases such as oral cancer and that many of the facial injuries they saw everyday could be prevented through education.
There are now more than 40 facial surgeons throughout the United Kingdom collaborating with a team of nine talented Saving Faces researchers. Together they are carrying out ground breaking work in areas such as the role of selective neck dissection in early oral cancer treatment, the psychological factors in head and neck and gastrointestinal cancer, the prevention of smoking and binge drinking amongst teenagers and the use of microcytoscopy to provide a non-invasive, in-vivo rapid detection tool for oral cancer.
This collaborative approach enables our researchers to answer vital questions more rapidly than even the most famous of single institutions. In addition to the surgeons who volunteer their services, Saving Faces is also fortunate to have patients who are willing to participate in clinical trials to give hope to others who will in future undergo treatment. Former patients are also providing support to newly-diagnosed patients and their families through a support network. The emotional and psychological impact of surgery is often just as traumatic as the procedure itself.
A couple of months ago I was asked to help them with some patient led research and I have been asked to gather information about UK orthognathic surgery patient’s experiences. The data gathered from this research will be used to help improve services and care in the NHS around the UK. It would really help if you could spare 5 minutes of your time to fill in this brief online questionnaire about your experience.
Please note this is for UK PATIENTS ONLY!
This project is run by the National Facial and Oral Research Centre (NFORC) which is funded by Saving Faces, together with British Association of Oral and Maxillofacial Surgeons (BAOMS) and British Orthodontic Society (BOS). The online feedback survey only requires initials and month/year of birth, which means the result will be anonymous and no individual will be identified from the result.
The short questionnaire has already been distributed to clinicians at hospitals all over UK, and has received hundreds of results. However, we would like the result to be the least biased, which means we need more entries directly from orthognathic patients, as opposed to those selected by clinicians.
As always, sending my best wishes and love and thank you for checking out my blog
I will be sure to update you with my case and progress soon and to share some more information on the research I am partaking in.
To read about my recovery from orthognathic surgery and titanium plate removal surgery follow the links below.
To find out more click on the link below:
If you would like to be kept informed about the latest work I am undertaking and want to receive more content from the Jaw & Face charity project, you can subscribe for FREE on the link below.
You can now continue the chat and speak with other patients on my new closed Facebook group:
Looking forward to connecting with you soon!
Lots of love always,